Health Care Providers’ Perspectives on COVID-19 and Medical Neglect in Children with Life-Threatening Complex Chronic Conditions

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dc.contributor.authorCleveland, R. W., Deming, R. S., Helton, G., Wilson, C. R., & Ullrich, C. K.
dc.date.accessioned2015-09-25T14:42:58Z
dc.date.available2015-09-25T14:42:58Z
dc.date.issued2022
dc.description.abstractPurpose Little is known regarding medical neglect in children with Life-Threatening Complex Chronic Conditions (LT-CCCs). We examined the impact of COVID-19 on concern for medical neglect in this population. Methods Qualitative interview study of multi-disciplinary health care providers (HCPs) from critical care, palliative care, and complex care services on the topic of medical neglect in children with LT-CCCs. We used inductive thematic analysis to generate themes. Findings presented herein are derived from a sub-analysis of the larger study that focused specifically on discussion of COVID-19 by HCPs. Results 9 of the 20 HCPs interviewed mentioned COVID-19 as influencing situations of potential medical neglect. These 9 represent all disciplines and teams. Interviewees reported COVID-19 increased burden on parents and likelihood of medical neglect due to: 1) Familial distancing from medical and social support and, 2) Changes to medical care delivery that impaired the medical community’s ability to engage and support families. Conclusions The COVID-19 pandemic has exposed the fragility of the medical and social systems that supports families of children with LT-CCCs. These findings are consistent with previous literature that suggest that the COVID-19 pandemic has increased the risk for child maltreatment. It additionally highlights the vulnerability of this patient population.en_US
dc.identifier.citationCleveland, R. W., Deming, R. S., Helton, G., Wilson, C. R., & Ullrich, C. K. (2022). Health Care Providers’ Perspectives on COVID-19 and Medical Neglect in Children with Life-Threatening Complex Chronic Conditions. Journal of Child & Adolescent Trauma, 1-7.en_US
dc.identifier.urihttps://link.springer.com/article/10.1007/s40653-021-00428-z
dc.identifier.urihttp://hdl.handle.net/11212/2486
dc.language.isoen_USen_US
dc.publisherJournal of Child & Adolescent Traumaen_US
dc.subjectchild medical neglecten_US
dc.subjectCOVID-19en_US
dc.titleHealth Care Providers’ Perspectives on COVID-19 and Medical Neglect in Children with Life-Threatening Complex Chronic Conditionsen_US
dc.typetexten_US
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