Developing Structure and Process Standards for Systems of Care Serving Children and Youth with Special Health Care Needs
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The overall goal of phase one of the project, National Consensus Framework for Improving Quality Systems of Care for Children and Youth with Special Health Care Needs, is to compile, define, and reach consensus among a diverse group of stakeholders on the necessary process and structural standards for health care systems serving CYSHCN. Creating a comprehensive, quality system of care for CYSHCN has been one of the most challenging areas for state health leaders and other stakeholders such as state Title V maternal and child health programs, pediatricians and family physicians, health plans, state Medicaid and Children’s Health Insurance Program (CHIP) agencies, and families. The ACA has further heightened this need as states prepare to extend coverage to millions of uninsured children and adults, design essential health benefits, and implement new provisions to achieve the “Triple Aim” of: 1) improving the patient experience of care (including quality and satisfaction), 2) improving the health of populations, and 3) reducing or bending the curve of health care costs.